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Perth Children's Hospital Foundation
Telethon Kids Institute
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Starlight Children's Foundation
Radio Lollipop
Ronald McDonald House Charities Western Australia
Kiind
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HeartKids
Redkite
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For health professionals
Emergency Department Guidelines
CAHS Clinical Disclaimer
Children's Antimicrobial Management Program
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Asplenia, Hyposplenia and Complement Deficiency Vaccination and Prophylaxis
Brief Resolved Unexplained Event
Clinical care of paediatric patients with COVID-19
Invasive Encapsulated Bacterial Infections: Investigations to Detect Immune Deficiency
Nephrotic Syndrome Management
Paediatric Inflammatory Multisystem Syndrome (PIMS-TS) following SARS-CoV-2 Infection: Diagnosis and Management
Pleural empyema
Urinary tract infection
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Pre-referral guidelines
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Resources
Our services
Resources
For patients and families
RARE Helpline: Service Navigation Support for Australians Living with a Rare and Complex Disease
Rare Voices Australia
Kiind - Navigate the world of disability
Understanding and Supporting Children’s Mental Health
Headspace – Mental Health Support for Young People
SWAN Australia - Syndromes Without A Name
Support for Siblings of People with Disability in Australia - Siblings Australia
Caring for someone - Services Australia
Envisage Families - Support for families with developmental concerns
MyTime - Supporting parents and carers of children with disability
National Disability Insurance Scheme - Raising Children Network
Early Start Intervention Program Perth - Early Childhood Rocky Bay
What is Genomics Testing?
5 questions to ask your healthcare provider before you get any test, treatment, or procedure
Planning for your Appointment - healthliteracyplace.org.uk
For professionals
The National Recommendations for Rare Disease Health Care - Rare Voices Australia
Rare Voices Australia RARE Portal
List of Rare Diseases | A-Z Database | NORD
LyfeLanguages - Universal Medical Translator for Indigenous Languages
Global Nursing Network for Rare Diseases
Medics4RareDisease Learning Modules (Short length)
Centre for Genetics Education - Genetics and Genomics Resources
RACGP CPD Rare Diseases Unit – Search Unit 607 on the
gplearning (racgp.org.au)
portal
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