Rare Care Centre

Rare Care – the Clinical Centre of Expertise for Rare and Undiagnosed Diseases (Rare Care Centre) aspires to ensure children with rare and undiagnosed diseases (RUD) and their families, live their best lives possible.

The Rare Care clinical service provides holistic care and support through a dedicated statewide cross sector care coordination service for children and adolescents with a rare or undiagnosed disease.

The clinical service is complemented by innovative digital solutions, education and workforce capacity building initiatives, family support programs, new clinical research infrastructure, global professional networks, and advocacy locally, nationally and internationally.

Rare Care Centre framework diagram

Rare Disease Facts 

Impact report

The Rare Care Centre has recently released its inaugural impact report.

The report highlights the key milestones, accomplishments, partnerships and new initiatives led by the Centre in the first year. This work demonstrates the unwavering commitment to transforming the lives for children living with rare and undiagnosed diseases and their families. 

Read the report [PDF] 

Funding partners

The Rare Care Centre is a unique alliance between Child and Adolescent Health Service (CAHS) and the following philanthropic foundations:

Find out more about the Rare Care Centre

Rare Care Centre Clinical Service icon

Clinical Service

Rare Care Centre Digital Solutions icon

Digital Solutions

Rare Care Centre Education Workforce icon 

Education & Workforce

Rare Care Centre Advocacy and Partnerships icon

Advocacy & Global Partnerships


Global Nursing Network: Rare Diseases logo

Global Nursing Network



Reach clinic

North Metro TAFE
Mount Lawley

by appointment only


Monday to Friday, 8am to 4pm

Contact us


6456 2222 (PCH Switchboard)