Medication information
For some children and adolescents, medications are prescribed to control and manage neurological conditions.
Some medications used to treat neurological conditions can only be prescribed by neurologists. However, many others, can be prescribed by general paediatricians and general practitioners (GPs).
Please also note that if your child is under the care of other PCH teams, you should contact the relevant team for specific prescription needs.
Your GP is also a core member of your child’s health care team, and you are encouraged to develop a relationship with a doctor in the community.
This doctor will be updated on your child’s care and management after visits to the hospital and can therefore assist with medication prescriptions when needed.
Using a consistent pharmacist in the community will also support your child’s care and management. Pharmacists in the community are an excellent resource for all medication related matters, including medication supply and education.
In the event you have run out of repeats and are unable to obtain a new prescription urgently, community pharmacies may dispense an owing supply in some cases. You should explore this option with your preferred community pharmacist.
What to expect from PCH Neurology regarding medication prescriptions
You are encouraged to have all neurology medication requirements completed at your outpatient clinic visit or inpatient stay. However, if for any reason, repeat medication
prescriptions are required between visits you should make an appointment with your child’s regular GP.
This includes for authority medications and increased quantities of non-authority medications.
Outpatient prescriptions provided by PCH Neurology between outpatient clinics or inpatient stays is only available for the following medications:
Medications available ONLY from PCH Pharmacy:
Liquids manufactured for PCH Pharmacy
- Phenobarbitone
- Clonidine
- Propranolol
- Trihexyphenidyl
- Omeprazole (neonate/size 6F NGT)
- L-Carnitine
- Hydrocortisone
- Glycopyrrolate
- Folic acid
- Domperidone
- Dantrolene
- Co Enzyme Q10
- Biotin
- Zonisamide
- Clobazam
- Baclofen
Special Access Scheme (SAS) Medications
- Fenfluramine (Hospital Committee Approval Required)
- Cannabidiol (CBD) Tilray (Hospital Committee Approval Required)
- Flunarizine (Hospital Committee Approval Required)
- Buspirone
- Deflazacort
- Hyoscine Patch
- Melatonin 5 mg tablets
- Piracetam
- Clonidine patches (Hospital Committee Approval Required)
Other
- Melatonin liquid
- Melatonin 2 mg tablets
- Chloral Hydrate
- Pyridoxine 25 mg tablets
- Rufinamide
- Phenytoin 100 mg/5 mL liquid
Please also note the following general information
- PCH Pharmacy will charge the same amount as community pharmacy for PBS scripts.
- For non-PBS scripts PCH pharmacy will charge at the PBS concession price for concession care holders and at or below the PBS general price for general patients.
- For non-PBS prescriptions, PCH Pharmacy charges a copayment per 1 month supply, irrespective of pack size.
- Non-PBS medication may be less expensive from community pharmacy.
Should the required medication appear in this list you may be able to obtain a prescription via the PCH Neurology Script line by:
1. Calling 6456 4333 and following the prompts to leave a message
2. Email PCH.NeurologyScript@health.wa.gov.au
Remember to
- Provide your name, your child’s name, date of birth and if known hospital number and the medication name and dose.
Please note: in most cases your request will be processed within 14 working days from the date of your message.
Your opinion
We would love to hear your feedback and suggestions about the service we provide which can be provided through the Perth Children’s Hospital Consumer and Family Engagement Service at: https://pch.health.wa.gov.au/For-patients-and-visitors/Compliments-and-complaints. Or by calling 6456 0032.